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得了MS(SCA,脊髓小脑共济失调)就要在轮椅上过一生吗?

时间:2018-07-23 阅读:273 回复:0

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我一直患有一种疾病,这种疾病叫作MS(脊椎神经萎缩)。开始时我只是感到累,活动之后我需要睡觉。每天我会睡12-15个小时,有的时候我会睡一整天。然后,我的身体开始出问题了。现在我的身体时常卡住,我的头脑连接不到我的身体的某些部分,有的时候是腿,有的时候是脊椎,有的时候是手臂。身体卡住的时候我不能移动,不能站起来,不能使用我的手臂。这个时候我知道发生了什么,我会去感觉身体是如何发生痉挛的,然后我的头脑就不能控制这些部分了。

人们一直在寻找治疗这种疾病的方法,西方越来越多的人得了这样的病,但是现在既没有有效的药,也没有治疗办法。我自己也在寻找治疗的办法,我发现能量活力运动可以极大地帮助我,我也发现这与我吃的东西有关,自然的生活,新鲜的空气,住在大自然里对我来说是重要的。

通过做能量活动,我对身体和头脑的信号变得非常敏感。现在当我的身体卡住的时候,我能感觉到能量在身体的哪个点停止流动并且阻碍了我的行动。如果有人把他的手放在那个地方,那个地方就会放松下来,慢慢的我的头脑和身体可以再次连接上。每次这样之后,我会感到非常累,然后进入深深的睡眠。睡了一觉之后我的精力会恢复,我又能自己行动了。

如果我在荷兰发生那样的事情,周围的人们和医生会非常害怕,他们会叫一辆救护车把我送去医院。我没有能力让他们不要恐慌,告诉他们只要放一只手在那个卡住的地方就好。他们会把我当作一个需要被看护的病人,而忘记了他们并不知道怎么来帮助我。如果有人把我从胳膊底下拉起来,事情会更糟。如果我被他们以那样的方式来照看,我知道我要在轮椅上终其一生。

我不需要轮椅,Sandesh一直在帮助我。他为我调配食物,教我做能量活动,这让我对身体的信号变得敏感。现在我能够离开他独立行动,我能告诉其他人怎样来帮助我。他让我变得强壮和独立,让我知道我在生命中所具有的能力,让我了解我的疾病。

我喜欢住在O”生活社区。这里的人们相互倾听,互相尊重。我们一起过着自然的生活,每天做能量运动来增进我们的健康,我们种植有机食品等等。在这里我感觉到安全,我可以行动而不用害怕MS的侵袭。他们能明白我,我可以告诉他们怎样来帮助我。这里的生活和食品能够维护我的健康,在荷兰我找不到这样的环境能够支持我。

I live with a disease. This disease is called MS, Multiple Sclerosis. At first I only felt tired. Later on my body started to malfunction. Currently my body sometimes goes into seizure. My mind cannot connect with different parts of my body, sometimes the legs, sometimes the spine, sometimes my arms. At such moments I am unable to move.

This sickness is one of sicknesses for which the world is still seeking a cure. There are no medicines, there is no treatment. But in the West it is happening to more and more people.

In Holland, people around me and doctors panic when an attack comes on. They would just call an ambulance.They look upon me as a patient they need to care for, but they forget they do not know how. With this way of taking care I know I will end up in a wheelchair.

Until now Sandesh has always been able to help me. He prescribed me some food supplements and taught me how to do the Energy Resume Exercise that helped me so much. This helped me to become sensitive to the signals of my body. I am now able to tell people how they can help me. If somebody puts a hand on the part with problem, that part of my body relax and slowly my mind and body can connect again. After an attack I will become very tired and fall into a deep sleep. After the sleep I feel refreshed and I can function independently again.

I love to live in Greenfield Health commune. People here learn to respect each other. We live a natural life together. We exercise every day to benefit our health. We grow our own organic food and produce organic tea. I feel that I am safe, and can function without being fear of my attacks. People understand here and I can tell them what to do. The life rhythm here and the food that we eat supports my health. In Holland I was not able to find this support.
I hope one day I can tackle the cause of my disease. If I can start to understand this disease, my experience would be able to help other people.

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